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Ethics Committee (EC)

      Composition

      The Ethics Committee is made up of representatives of the Steering Committee, scientists and experts in the disciplines that contribute to its missions (ethicists, lawyers, philosophers, etc.).

      The list of members of the Ethics Committee is as follows: 

      First nameNameOrganismInstitutCityRole
      GaëlleBujanCNRS  Déléguée à la protection des données
      AnneCambon-ThomsenCNRS  Représente le PFMG2025
      FrançoisEisingerInsermInstitut Paoli-CalmetteMarseilleMédecin, Institut Paoli-Calmettes; membre du Comité Ethique Inserm; France Médecine Génomique 2025
      NathalieGandonINRAE   
      ChristineGaspinIFB+INRAE ToulouseCollège direction IFB / Responsable plateforme GenoToul
      MarcHanauerGustave Roussy  Resp. pF IFB; projet Orphanet
      ClaudineMédigueIFBIFB-coreEvryDirectrice
      CatherineNguyenAviesanTAGCMarseilleDirectrice ITMO GGB Aviesan
      JacquesNicolasInria   
      AnaRathOrphanet StrasbourgResponsable Orphanet, médecin + philosophe
      AliceRenéCNRS / INSB  responsable. Cellule Réglementation Bioéthique
      Jacquesvan HeldenIFBIFB-coreOrsayCoordinateur
      AlainViariINRIA   

      Missions

      The Ethics Committee advises the Steering Committee on the legal, ethical and societal issues associated with certain IFB activities, in particular the protection of sensitive data and ethical issues related to personal genomics. Its activities include the analysis of ethical issues, the organisation of intra-IFB and public debates and communication on ethical issues.

      The Ethics Committee meets once every six months.

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